I am thrilled to provide an update for you from the Danny Did Foundation.
When I left your meeting in the fall, I had tears of joy on my face. I knew that the funds raised would bring much deserved peace of mind to many homes. Your gifts provided seizure detection alarms for fourteen families in need! I’d like to share a few stories below so that you see the impact of your generosity. I am also including photos of the sweet children you helped- and of course a photo of Danny.
Apollo, 8 years old, is being raised by his grandmother. He is autistic and began having seizures last year. He has worked very hard on the behavioral issues that accompany his autism, but the seizures brought them back and he hits and bites during/after his seizures. He cannot control his little body even though he has worked so hard in therapy. Also, his seizures are severe, and he has been airlifted twice and was intubated with his last seizure. His grandmother is very happy to know that Danny Did will provide an Emfit Movement Monitor which will be placed under his mattress and will alarm her when he is having a seizure during the night.
Hayley, 5 years old, has intractable epilepsy. Her parents have tried surgery and many medications. She is now on the Ketogenic diet and multiple new medications. Her seizures do not involve movement, but they come in clusters and she does not have time to recover in between, so she was placed into a coma recently to stop them. She will use our grant to buy a Pulseguard which will alert her parents when it detects a change in pulse/heart rate that accompanies her seizures. Her mom feels this device may be the first step toward Hayley sleeping in her own room.
Braydin, 11 years old, was seizure free for one year, but they recently returned. He was found during a recent seizure by his young sister and she is now very scared. With the DDF grant they will purchase the Embrace Watch so that his parents will always be the first to be alerted when he is having a seizure.
We were touched by the welcome we received at your event and moved by the generosity of everyone in the room. Simply put, you are doing good things ladies, and making an impact, and we are honored to call you our friends.
Best of luck with our Spring fundraiser and please do keep in touch, and lastly please refer any friends or family to Danny Did if there is ever a need.
With gratitude and respect,
Mary Duffy and all of us at the Danny Did Foundation